In my neighborhood the diseases that get the community involvement are breast cancer and special needs kids. Kidneys get almost no support though there is a great Zoo Kidney Walk by the NKF every Spring. Support the PKD walk.
Lance commented on my post about Sirolimus and ADPKD. I write this blog primarily for other medical professionals. I'm happy to have anyone read it, but the voice I use comes from my experience as a doctor and as a educator. Whenever a post gets picked up by patient groups I worry about how it will be perceived. I worry that I may have a glib when I mean to be funny or come across uncaring when I'm trying to be cooly scientific. I have had some close calls, but nothing has exploded, yet. This fear makes posts like Lance's extra special.
